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Resources

Below are resources for those interested in research advocacy. Most trainings are built for patient and caregiver advocates, research scientists can learn from those resources as well!

 

The Cornell Cancer Community Partnership is an AMAZING resource and they provide a list of additional resources ofr those interested in connecting advocates and researchers. Click Here

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Questions to begin dialogues between researchers and advocates can be found here.

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If you have any additional resources, please email us!

Online Training
  • e-Training for Patients, Advocates and the Community by Cancer Information and Support Network Click Here

  • Various Research Advocacy Training Programs and Modules by Research Advocacy Network Click Here

  • Research Advocate Training by Facing Our Risk of Cancer Empowered (FORCE) Click Here

  • Understanding Evidence-based Healthcare: A Foundation for Action by Cochrane Training Click Here

  • Progress for Patients by Friends of Cancer Research Click Here

In Person Training
  • Accelerating Anticancer Agent Development and Validation Workshop Advocacy Education (AAADV) Click Here

  • Project Lead Click Here

  • Respected Influencers through Science and Education (RISE) Click Here

  • Research Advocacy Training and Support (RATS) Click Here

  • Advocates in Science Click Here

  • Partners in Progress: Cancer Patient Advocates and FDA Click Here for 2019 event

  • AACR's Scientist<->Survivor Program Click Here

  • Alamo Breast Cancer Foundation Annual Advocate Program Click Here

  • Living Beyond Breast Cancer's Hear my Voice Click Here and Young Advocate Program Click Here

Articles
  • DelNero P and McGregor A. Patients are partners in the fight against cancer. Science. Click Here

  • Pate, L, et. al. How Researchers, Clinicians and Patient Advocates Can Accelerate Lobular Breast Cancer Research.  Cancer (Basel). 2021 Jul; 13(13): 3094. Click Here 

  • Riter RN and Weiss RS. Connecting Students with Patients and Survivors to Enhance Cancer Research Training. Cancer Research. 2019 Aug; 79:4011–4. Click Here

  • Salamone JM, et. al. Promoting Scientist–Advocate Collaborations in Cancer Research: Why and How. Cancer Research. 2018 Oct; 78: 5723–8. Click Here

  • Stires H, et. al. Improving the odds together: a framework for breast cancer research scientists to include patient advocates in their research. npj Breast. 2022 June; 8(75). Click Here

Twitter

Follow cancer social media groups on Twitter. Visit this website from Symplur for specific hashtags!

Suggestions??

Email us to let us know which resources you think we should include! cancertraineeadvocateprogram@gmail.com

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